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Another Visit with Lion
The kids could not wait to see their little brother again. He is doing so well, he should be coming home in a couple of days. We are all so excited. We will be bringing our little boy home and this...
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Our Little Smiley Boy
Landen is doing so well today. He is giving us the BIGGEST smiles I have ever seen. He is just doing so well, we are so grateful.
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ksl.com - Lehi infant receives hospital's first incompatible heart transplant
ksl.com - Lehi infant receives hospital's first incompatible heart transplant
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2nd Week at Home
We'll its been a while since we've posted. We're trying to get used to the new routine... a new normal. Lion is doing so well. Hes down to about 14 meds and only 22 doses instead of the 18 meds and 30...
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Its been way too long since our last post!!
Hello everyone!Landen is doing so well! Two weeks ago the doctors put in a stomach tube. He had the nose tube, and it was just making him gag and not be able to keep his food down. I don’t blame the...
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Alomst 5 Months Post Transplant
THought we would add some photos since its been a while. Landen is doing well. He's fighting a little rejection right now, but the doctors said it isn't too bad, in fact they said that if he were...
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The Letter
Last week we received another great gift. We received a beautiful letter from the most wonderful family-Landen's donor family. "Donor Family" is what they are called at this time, but they are more...
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The Quilt
While Landen was in the NICU before we knew anything about a transplant, I decided I wanted to make a quilt and have the doctors, nurses, etc. sign it. It would a quilt to remember all the people that...
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Sorry
I was just reading my friend Chrissy's blog. Chrissy and I met at the hospital months ago at transplant clinic. It turns out that her little boy who is KoKo's age got his transplant just 2 weeks after...
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Updates
Again, I am so sorry for never posting anything. Things are going so well. A couple of weeks again Landen all the sudden decided to eat. He is eating baby food a couple of times a day and we are...
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Wonderful Days
Just thought we would give a little update on Landen. He is doing amazing. He spent a couple days in the hospital last week with a bacterial infection in his stomach. They put him on antibiotics and he...
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Is Winter Over Yet?
This winter seems to never end. I have never particularly liked winter...it's cold and it snows a lot, but never has winter seemed so bad as this year. Winter now not only means cold and snow...but...
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Happy Birthday Landen...
As mentioned in the previous post...Landen celebrated his 1st birthday last week. We had hoped that he would have eaten his cake (I even made him two kinds because I was not sure which he would like)....
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Welcome Spring
My good friend let me know today the good news...today is the first day of spring. Wow, I never knew I would be so excited to be done with winter. Although it still seemed like winter with how much...
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1st Annual Heart Cath
What a great day for us. Landen had his annual heart cath and NO REJECTION. We are so grateful. Dr. Grey, who did the heart cath, said it looked a lot better than last time and that everything looked...
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Our Little Lamb
As most of you know when Lando recieved his new heart last year on Mother's day, the donor family also sent a stuffed animal...a little lamb. In rememberance of our donor our kids made a little lamb at...
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The Donor Family
A couple days of after Landen's transplant, Joe and I wrote a thank you letter to our donor family. To our amazement and happiness, weeks later we received a letter back from the donor family. It was...
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Back at Primary's
We thought we still had a little while before winter and the sick season begun, but we were wrong. Landen went to the ER on Tuesday afternoon for respiratory distress and fevers. We knew he had ear...
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Happy Birthday to Me
Well, this message is more about Landen's Heart Cath and Biopsy than about my birthday. However, because of his wonderful biopsy, I, too, had a wonderful birthday. The doctors said his biopsy could not...
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Family Pictures
I think sometimes when things are going well, I forget to write down on the blog about how great life is. Why is it easier to write down when we are in the hospital with sickness than it is while we...
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Hotel on the Hill...
Landen had been sick for a few days...mainly fever, cough, and a high respiratory rate. So, Joe took him to a close hospital to get him suctioned. They, of course, did not like his respiratory rate so...
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Annual Heart Present
As many of you know when we received Landen's life-saving gift two years ago on Mother's Day, our donor family also sent another gift, a stuffed lamb. Our donor family's dad, Troy, did not know at the...
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"Oncology"
Well, this has been a rather long last couple of days. We had transplant clinic on Thursday and I was expecting a great clinic visit. Landen looks and acts great. When our cardiologist came in to see...
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Celebrate Life Memorial
I was asked to speak at the Celebrate Life Memorial last weekend. I was so nervous going into the event, because it would be the most people I have ever spoken in front of and it being such an...
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Meeting Heart Dada
I am so sad that it has taken me this long to post. I think facebook has taken away some of the need to post, but I love having this to look back on. On December 31, 2012, we were able to do one of...
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